Dravet Canada is a network for families, friends and caregivers of people with Dravet spectrum disorders.
Since the 2024 AGM ...
At the 2024 AGM, we decided to reinvigorate the charity and selected a Transition Team to guide us through those next steps. The Transition Team (Carl - Chair, Ankie, Guida, Lisa, Lynn, Mandy, Patti, Sabrina, Stephanie) conducted interviews with our community members, developed critical documents, accepted nominations for positions, and developed our three-year Strategic Plan.
At the 2025 AGM, the Transition Team presented the suggested group of Board Directors (Carl, Lisa, Jason, Danielle, Audrée) and recommended to our new Board that we hire our first staff member (Patti).
Since June of 2025, the new Board and Management have been working hard to bring the three-year strategic plan to life.
What Do We Do?
Dravet Canada educates our families and the public about Dravet spectrum disorders by providing conferences, family retreats, and lectures to the medical community, and collecting and disseminating information on this topic.
Dravet Canada receives and maintains a fund or funds and applies all or part of the principal and income therefrom, from time to time, to qualified donees as defined at section 149.1(1) of the Income Tax Act (Canada).
Dravet Canada undertakes activities ancillary and incidental to the attainment of the above charitable purposes.
Who We Are
Carl Weatherell - Director and Chair
Lisa Alexander - Director
Jason Wong - Director
Dr. Danielle M. Andrade - Director
Audrée Daoust - Director
Patti Bryant - Executive Director
Memberships
