Dravet Spectrum Disorders are rare and catastrophic forms of epilepsy that begin in infancy. Children suffer from multiple types of seizures and many associated conditions including behavioural and developmental delays, movement and balance issues, delayed language and speech issues. Current treatment options are extremely limited, resulting in diminished quality of life and a poor prognosis for these children. Needless to say, the burden on these families is significant.The goal of our Charity is to support individuals and families affected with this type of epilepsy and to promote research so that one day there may be an effective treatment to prevent the disabilities associated with this disorder or perhaps find a cure.