Supporting individuals and families affected with Dravet Syndrome and SCN1A-related DEEs and promoting research so that one day there may be an effective treatment or perhaps a cure.
Dravet Canada has awarded over $500,000 towards research into the care, cure, treatment and understanding of Dravet Syndrome and SCN1A-related developmental and epileptic encephalopathies (DEE's).
Dravet Syndrome and SCN1A-related DEEs are rare and catastrophic forms of epilepsy that begin in infancy. Children suffer from multiple types of seizures and many associated conditions including behavioural and developmental delays, movement and balance issues, delayed language and speech issues. Current treatment options are extremely limited, resulting in diminished quality of life and a poor prognosis for these children. Needless to say, the burden on these families is significant. The goal of our Charity is to support individuals and families affected with this type of epilepsy and to promote research so that one day there may be an effective treatment to prevent the disabilities associated with this disorder or perhaps find a cure.
Dravet Canada's current research focus is growing Dr. Andrade's Ontario DEE Registry into a National DEE Registry that is both a monitoring and research registry.
