Onward through 2026 and into 2027...
Our big research project this year is to build our National Registry, making it easier for researchers to gather information, making it easier for clinical trials to find patients, and easier for us to explain exactly what we need and why.
We are also creating the "Living with Dravet in Canada Roadmap". This will help everyone living with Dravet to know what may be over the horizon, what to prepare for, where to find help, and collect regional supports and services.
And of course, in 2027, we are planning our National Event. We are still in the beginning stages of planning, stay tuned for more details.
Thank you for all you do to help!!
What Do We Do?
Dravet Canada educates our families and the public about Dravet spectrum disorders by providing conferences, family retreats, and lectures to the medical community, and collecting and disseminating information on this topic.
Dravet Canada receives and maintains a fund or funds and applies all or part of the principal and income therefrom, from time to time, to qualified donees as defined at section 149.1(1) of the Income Tax Act (Canada).
Dravet Canada undertakes activities ancillary and incidental to the attainment of the above charitable purposes.
Who We Are
Carl Weatherell - Director and Chair
Lisa Alexander - Director
Jason Wong - Director
Dr. Danielle M. Andrade - Director
Audrée Daoust - Director
Elyse Roach - Director
Patti Bryant - Executive Director
