Supporting individuals and families affected with this type of epilepsy and promoting research so that one day there may be an effective treatment or perhaps a cure.
We have moved to continuous intake for Research Grant applications.
We will review and award quarterly.
To be awarded a grant, you must be attached to a qualified donee (typically your University), must be researching something that will further knowledge of, treatment of, or a cure for the Dravet spectrum of disorders.
We are interested in everything from genetic research to stop the disorder from progressing as soon as it is recognized in infants, through halting regression in children and adults after the disorder has progressed. A quick, easy, and accessible test for diagnosis would be good. Anything that can improve the lives of families living with Dravet will be considered.
Please share with your colleagues, as we are also interested in the economic/social/emotional burden of this disease; best educational methods; behavioural; gait and balance issues; etc.
Thank you for your contributions in this area.
Dravet Canada has awarded over $247,500 towards research into the care, cure, treatment and understanding of Dravet spectrum disorders.
Dravet Spectrum Disorders are rare and catastrophic forms of epilepsy that begin in infancy. Children suffer from multiple types of seizures and many associated conditions including behavioural and developmental delays, movement and balance issues, delayed language and speech issues. Current treatment options are extremely limited, resulting in diminished quality of life and a poor prognosis for these children. Needless to say, the burden on these families is significant.The goal of our Charity is to support individuals and families affected with this type of epilepsy and to promote research so that one day there may be an effective treatment to prevent the disabilities associated with this disorder or perhaps find a cure.