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Supporting Families Living with Dravet Syndrome and SCN1A-related DEE's
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10 events found.

Events

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Today
  • September 2025

  • Thu 25

    Hannah’s Bananas

    September 25, 2025 - November 30, 2025

    Join our team, sponsor our walkers, donate to our cause, start your own team Hannah's Bananas will be virtually walking until November 30. On September 27th, our family did the... Read more »

  • Thu 25

    Owen’s Rockstars

    September 25, 2025 - November 30, 2025

    We are asking all of our Dravet families and friends from coast to coast to please sign up this year for our National Fundraising Event, create a team in honour... Read more »

  • Thu 25

    Henry’s Squad

    September 25, 2025 - November 30, 2025

    Henry's Squad will be virtually walking until Nobember 30 in honour of all our purple shirt wearers! Please join, sponsor, create your own team...

  • October 2025

  • Thu 9

    Hub meeting – Quebec – Réunion du pôle régional du Québec

    October 9, 2025 @ 2:00 pm - 3:00 pm
    Teams
  • Sat 11

    Équipe de Thomas

    October 11, 2025 @ 10:00 am - 3:00 pm

    Bonjour à tous, Nous vous invitons chaleureusement à participer à une marche solidaire pour soutenir la recherche et l’espoir de trouver une cure contre le syndrome de Dravet. 📅 Le... Read more »

  • Sun 12

    New Brunswick Coalition of Persons with Disabilities

    October 12, 2025 @ 7:30 pm - 8:30 pm

    Back by popular demand! Once a month, on the 2nd Sunday of the month, we invite you – our members – to join in to our virtual Member Matters sessions.... Read more »

  • Thu 16

    Hub meeting – Ontario

    October 16, 2025 @ 10:00 pm - 11:00 pm
    Teams
  • Sun 19

    New Brunswick Coalition of Persons with Disabilities

    October 19, 2025 @ 7:00 pm - 8:30 pm

    Twice per month, we invite our members to join in for our virtual Coffee Chat. You have something in mind you want to talk about? Great! Join us! Just want... Read more »

  • Mon 20

    Hub meeting – Atlantic

    October 20, 2025 @ 11:30 am - 12:30 pm
    Teams
  • Mon 20

    Hub meeting – Atlantic (evening)

    October 20, 2025 @ 7:00 pm - 8:00 pm
    Teams
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