Lainey has been a warrior of Dravet Syndrome since 2015, when she was 6 months old. She was first diagnosed in 2017, but had her first seizure in February 2015. She is currently taking 6 anti-epileptic drugs, and still has seizures almost daily. She has a heart of gold though, and would do anything for... Read more »

Bonjour à tous, Nous vous invitons chaleureusement à participer à une marche solidaire pour soutenir la recherche et l’espoir de trouver une cure contre le syndrome de Dravet. 📅 Le 11 octobre prochain, retrouvons-nous dès 10h au Parc Angrignon pour une marche d’environ 2 km. Le départ se fera à 10h30, près du stationnement situé... Read more »

Back by popular demand! Once a month, on the 2nd Sunday of the month, we invite you – our members – to join in to our virtual Member Matters sessions. We encourage you to submit ideas for subjects, as every session is devoted to doing a deep dive into ONE particular subject. Send your ideas... Read more »

Twice per month, we invite our members to join in for our virtual Coffee Chat. You have something in mind you want to talk about? Great! Join us! Just want to chit-chat? Join us! Every 1st and 3rd Sunday of the month (some exceptions). Must be registered to attend. Go here to register and you will... Read more »