Dravet Canada is a network for families, friends and caregivers of people with Dravet spectrum disorders.
2024 AGM and Board Election
We are renewing our charity, starting with our basic principles of getting together, supporting each other, educating everyone, and promoting research.
One large task we plan for this year is to find all of our families. We know we are not all on FaceBook, we need to get creative to find everyone.
To do all these things, we need a diverse range of skills. If you have experience in governance, financing, fundraising, administration, social media, social media searching, health research, patient advocacy, education, therapies….. we’d love to have you on board.
Please consider completing this form https://docs.google.com/.../1FAIpQLSeH2vsmSUU.../viewform... and joining us.
For Board members, the time commitment can be as little as an average of one hour a month, to as much as you’re willing to commit.
If you’re more interested in helping out with projects,
or have ideas to share, please send the information through this form https://docs.google.com/.../1FAIpQLScWuToWKpm.../viewform...
And please join us for our AGM as we re-build our future.
https://docs.google.com/.../1FAIpQLSdn6uGNbeA.../viewform...
What Do We Do?
Dravet Canada educates our families and the public about Dravet spectrum disorders by providing conferences, family retreats, and lectures to the medical community, and collecting and disseminating information on this topic.
Dravet Canada receives and maintains a fund or funds and applies all or part of the principal and income therefrom, from time to time, to qualified donees as defined at section 149.1(1) of the Income Tax Act (Canada).
Dravet Canada undertakes activities ancillary and incidental to the attainment of the above charitable purposes.
Who We Are
Chair/Research Director – Patti Bryant
Social Media Director - Stephanie Frosh
Secretary - Sabrina Lang
Memberships
