dravet.ca is the Canadian Network for families, friends and caregivers of people with Dravet spectrum disorders.
dravet.ca will educate our families and the public about Dravet spectrum disorders by providing conferences, family retreats, and lectures to the medical community, and collecting and disseminating information on this topic.
dravet.ca will receive and maintain a fund or funds and will apply all or part of the principal and income therefrom, from time to time, to qualified donees as defined at section 149.1(1) of the Income Tax Act (Canada).
dravet.ca will undertake activities ancillary and incidental to the attainment of the above charitable purposes.
If you have information to share, or have any questions, please let us know. If you are not a registered user of the site, we will share your post and send you your login information within one business day.
Information provided on this site is meant to complement and not replace any advice or information from a health professional.
What helps our new families most is hearing our stories, so feel free to share those too. And we love pictures.
Please join us as we go forward together.
published feb 2013
last edit oct 2014