| dravet.ca is the Canadian Network for families, friends and caregivers of people with Dravet spectrum disorders.
dravet.ca will educate our families and the public about Dravet spectrum disorders by providing conferences, family retreats, and lectures to the medical community, and collecting and disseminating information on this topic. dravet.ca will receive and maintain a fund or funds and will apply all or part of the principal and income therefrom, from time to time, to qualified donees as defined at section 149.1(1) of the Income Tax Act (Canada). dravet.ca will undertake activities ancillary and incidental to the attainment of the above charitable purposes. |
Stiripentol Access - Here is how it works: Your pharmacy emails s.buxson@biocodex.fr and sets up an account with Biocodex. Then when they place your orders, the distributor is Accuristix. |
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What helps our new families most is hearing our stories, so feel free to share those too. And we love pictures.
Please join us as we go forward together.
