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X-WR-CALNAME:Dravet Canada
X-ORIGINAL-URL:https://dravet.ca
X-WR-CALDESC:Events for Dravet Canada
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20250924
DTEND;VALUE=DATE:20251201
DTSTAMP:20260604T035948
CREATED:20250925T030945Z
LAST-MODIFIED:20250925T030945Z
UID:920-1758672000-1764547199@dravet.ca
SUMMARY:Annual Fundraising Walk
DESCRIPTION:Dravet Canada is here to ensure no one faces raising a child with Dravet Syndrome alone. This work – and that of Dravet Canada funded researchers – is supported by donors\, event participants\, corporate sponsors\, and volunteers. You can be part of this dynamic group of Canadians by getting involved in the fight to end Dravet Syndrome. \nThis Fall we encourage you to fundraise however you choose and connect with the Dravet Community online. You can organize a walk that can be as small as a walk around your local neighbourhood or park\, run\, cycle\, or a family BBQ\, challenge your family and friends to join you\, while accelerating the pace of Dravet Syndrome breakthroughs and empowering people affected by Dravet to live their best lives. \nWe are asking all of our Dravet families and friends from coast to coast to please sign up this year for our National Fundraising Event\, create a team in honour of your dravet child\, fundraise and share with all of us your event! All proceeds from the events will support Dravet Canada’s mission to raise and distribute funds for research into the care\, cure\, understanding\, and treatment of Dravet Spectrum Disorders and related activities. \nPlease sign up and help make these events a huge success and support a wonderful cause. \nThe cost to register is $20 for each participant and free for anyone with Dravet syndrome. You are encouraged to create a team\, join a team or register as an individual or a family and start spreading the word and most importantly raising awareness! Throw on some purple and lets get out there and celebrate our kids! \n 
URL:https://dravet.ca/event/annual-fundraising-walk/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250925
DTEND;VALUE=DATE:20251201
DTSTAMP:20260604T035948
CREATED:20250925T052934Z
LAST-MODIFIED:20250925T053405Z
UID:927-1758758400-1764547199@dravet.ca
SUMMARY:Biffy's Stompers
DESCRIPTION:Hello\, thanks for stomping by. \nMary Beth’s walkers will be virtual\, we’re very unreliable for any scheduled physical activity! lol \nThank you so much for supporting us in our fight against Dravet and our support for people living with it 🙂
URL:https://dravet.ca/event/laineys-defenders/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250925
DTEND;VALUE=DATE:20251201
DTSTAMP:20260604T035948
CREATED:20250925T053915Z
LAST-MODIFIED:20250925T053915Z
UID:932-1758758400-1764547199@dravet.ca
SUMMARY:Lainey's Defenders
DESCRIPTION:Lainey has been a warrior of Dravet Syndrome since 2015\, when she was 6 months old. She was first diagnosed in 2017\, but had her first seizure in February 2015. She is currently taking 6 anti-epileptic drugs\, and still has seizures almost daily. She has a heart of gold though\, and would do anything for anyone. She loves making new friends\, spending time with family\, and watching her favorite cartoons with anything squishy or soft.\nPlease support Lainey\, in helping Dravet Canada. Gene therapy is on the horizon for Dravet Syndrome patients\, which could change their lives forever!! \n 
URL:https://dravet.ca/event/laineys-defenders-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250925
DTEND;VALUE=DATE:20251201
DTSTAMP:20260604T035948
CREATED:20250925T024602Z
LAST-MODIFIED:20251103T195836Z
UID:912-1758758400-1764547199@dravet.ca
SUMMARY:Hannah's Bananas
DESCRIPTION:Join our team\, sponsor our walkers\, donate to our cause\, start your own team \nHannah’s Bananas will be virtually walking until November 30. \nOn September 27th\, our family did the Eramosa River Trail Park Run in solidarity with the Dravet Canada run in Brockville\, on the same day. We sported our Dravet purple and we hope you can join us too! Registering does not mean that you need to go to Brockville or even Guelph to run\, you can support from your couch or with a walk around your block! Our goal is to raise awareness in our community and raise funds for Dravet Syndrome research\, in this new era of gene therapy we are entering. So please donate\, share\, spread the word and wear purple with us on September 27th! \nIf you want to join us for the Eramosa River Trail park run\, it is free to register (always is) and it starts at 9:00am at the covered bridge in Guelph. You can run\, jog or walk! I’ll include the link to the registration in the comments. This race is also something that we do often as a family. We started doing it around the time of Hannah’s diagnosis and have done 10 5k’s as a family since! \nhttps://www.parkrun.ca/eramosarivertrail/
URL:https://dravet.ca/event/hannahs-bananas/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250925
DTEND;VALUE=DATE:20251201
DTSTAMP:20260604T035948
CREATED:20250925T030420Z
LAST-MODIFIED:20251103T200153Z
UID:917-1758758400-1764547199@dravet.ca
SUMMARY:Owen's Rockstars
DESCRIPTION:We are asking all of our Dravet families and friends from coast to coast to please sign up this year for our National Fundraising Event\, create a team in honour of your dravet child\, fundraise and share with all of us your event! All proceeds from the events will support Dravet Canada’s mission to raise and distribute funds for research into the care\, cure\, understanding\, and treatment of Dravet Spectrum Disorders and related activities. \nPlease sign up and help make these events a huge success and support a wonderful cause. \nThe cost to register is $20 for each participant and free for anyone with Dravet syndrome. You are encouraged to create a team\, join a team or register as an individual or a family and start spreading the word and most importantly raising awareness! Throw on some purple and lets get out there and celebrate our kids! \nPlease join Owen’s Rockstars\, sponsor one of our walkers\, create your own team \nOwen’s Rockstars will be virtually walking until November 30.
URL:https://dravet.ca/event/owens-rockstars/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250925
DTEND;VALUE=DATE:20251201
DTSTAMP:20260604T035948
CREATED:20250925T040537Z
LAST-MODIFIED:20251103T195611Z
UID:924-1758758400-1764547199@dravet.ca
SUMMARY:Henry's Squad
DESCRIPTION:Henry’s Squad will be virtually walking until Nobember 30 in honour of all our purple shirt wearers! \nPlease join\, sponsor\, create your own team…
URL:https://dravet.ca/event/henrys-squad/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20251009T140000
DTEND;TZID=UTC:20251009T150000
DTSTAMP:20260604T035948
CREATED:20251007T185227Z
LAST-MODIFIED:20251007T185227Z
UID:964-1760018400-1760022000@dravet.ca
SUMMARY:Hub meeting - Quebec - Réunion du pôle régional du Québec
DESCRIPTION:
URL:https://dravet.ca/event/hub-meeting-quebec-reunion-du-pole-regional-du-quebec/
LOCATION:Teams
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20251011T100000
DTEND;TZID=America/Halifax:20251011T150000
DTSTAMP:20260604T035948
CREATED:20250925T040001Z
LAST-MODIFIED:20250925T040001Z
UID:922-1760176800-1760194800@dravet.ca
SUMMARY:Équipe de Thomas
DESCRIPTION:Bonjour à tous\, Nous vous invitons chaleureusement à participer à une marche solidaire pour soutenir la recherche et l’espoir de trouver une cure contre le syndrome de Dravet. 📅 Le 11 octobre prochain\, retrouvons-nous dès 10h au Parc Angrignon pour une marche d’environ 2 km. Le départ se fera à 10h30\, près du stationnement situé sur la rue La Vérendrye. ☔ En cas de pluie\, l’événement sera remis au 18 octobre. – Même si vous ne pouvez pas être présents\, il est toujours possible de contribuer à la cause — chaque geste compte ! Merci de votre soutien\, et au plaisir de vous voir nombreux pour marcher ensemble vers un avenir meilleur.
URL:https://dravet.ca/event/equipe-de-thomas/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Sao_Paulo:20251012T193000
DTEND;TZID=America/Sao_Paulo:20251012T203000
DTSTAMP:20260604T035948
CREATED:20251006T231316Z
LAST-MODIFIED:20251006T231316Z
UID:952-1760297400-1760301000@dravet.ca
SUMMARY:New Brunswick Coalition of Persons with Disabilities
DESCRIPTION:Back by popular demand! Once a month\, on the 2nd Sunday of the month\, we invite you – our members – to join in to our virtual Member Matters sessions. We encourage you to\nsubmit ideas for subjects\, as every session is devoted to doing a deep dive into ONE particular subject. Send your ideas to info@nbcpd.org.\nJoin us for these sessions dedicated to subjects that are important to you as a person with a disability. \nRegister by following the link in the Event Calendar\, and you will receive your own individual link. Please keep that link to attend all future Coffee Chats or Member Matters sessions! \n 
URL:https://dravet.ca/event/new-brunswick-coalition-of-persons-with-disabilities-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20251016T220000
DTEND;TZID=UTC:20251016T230000
DTSTAMP:20260604T035948
CREATED:20251007T184950Z
LAST-MODIFIED:20251007T184950Z
UID:962-1760652000-1760655600@dravet.ca
SUMMARY:Hub meeting - Ontario
DESCRIPTION:
URL:https://dravet.ca/event/hub-meeting-ontario/
LOCATION:Teams
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Sao_Paulo:20251019T190000
DTEND;TZID=America/Sao_Paulo:20251019T203000
DTSTAMP:20260604T035948
CREATED:20251006T230914Z
LAST-MODIFIED:20251006T231347Z
UID:949-1760900400-1760905800@dravet.ca
SUMMARY:New Brunswick Coalition of Persons with Disabilities
DESCRIPTION:Twice per month\, we invite our members to join in for our virtual Coffee Chat. You have something in mind you want to talk about? Great! Join us! Just want to chit-chat? Join us! Every 1st and 3rd Sunday of the month (some exceptions). \nMust be registered to attend. Go here to register and you will receive your own individual link. Please keep that link to attend all future Coffee Chats or Member Matters sessions!
URL:https://dravet.ca/event/new-brunswick-coalition-of-persons-with-disabilities/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20251020T113000
DTEND;TZID=UTC:20251020T123000
DTSTAMP:20260604T035948
CREATED:20251007T165550Z
LAST-MODIFIED:20251007T165836Z
UID:955-1760959800-1760963400@dravet.ca
SUMMARY:Hub meeting - Atlantic
DESCRIPTION:
URL:https://dravet.ca/event/hub-meeting-atlantic/
LOCATION:Teams
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20251020T190000
DTEND;TZID=UTC:20251020T200000
DTSTAMP:20260604T035948
CREATED:20251007T170150Z
LAST-MODIFIED:20251007T170150Z
UID:958-1760986800-1760990400@dravet.ca
SUMMARY:Hub meeting - Atlantic (evening)
DESCRIPTION:
URL:https://dravet.ca/event/hub-meeting-atlantic-evening/
LOCATION:Teams
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20251020T220000
DTEND;TZID=UTC:20251020T230000
DTSTAMP:20260604T035948
CREATED:20251007T184736Z
LAST-MODIFIED:20251007T184736Z
UID:960-1760997600-1761001200@dravet.ca
SUMMARY:Hub meeting - Western
DESCRIPTION:
URL:https://dravet.ca/event/hub-meeting-western/
LOCATION:Teams
END:VEVENT
END:VCALENDAR