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X-WR-CALNAME:Dravet Canada
X-ORIGINAL-URL:https://dravet.ca
X-WR-CALDESC:Events for Dravet Canada
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BEGIN:VEVENT
DTSTART;TZID=UTC:20251020T220000
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DTSTAMP:20260604T051433
CREATED:20251007T184736Z
LAST-MODIFIED:20251007T184736Z
UID:960-1760997600-1761001200@dravet.ca
SUMMARY:Hub meeting - Western
DESCRIPTION:
URL:https://dravet.ca/event/hub-meeting-western/
LOCATION:Teams
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20251020T190000
DTEND;TZID=UTC:20251020T200000
DTSTAMP:20260604T051433
CREATED:20251007T170150Z
LAST-MODIFIED:20251007T170150Z
UID:958-1760986800-1760990400@dravet.ca
SUMMARY:Hub meeting - Atlantic (evening)
DESCRIPTION:
URL:https://dravet.ca/event/hub-meeting-atlantic-evening/
LOCATION:Teams
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20251020T113000
DTEND;TZID=UTC:20251020T123000
DTSTAMP:20260604T051433
CREATED:20251007T165550Z
LAST-MODIFIED:20251007T165836Z
UID:955-1760959800-1760963400@dravet.ca
SUMMARY:Hub meeting - Atlantic
DESCRIPTION:
URL:https://dravet.ca/event/hub-meeting-atlantic/
LOCATION:Teams
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Sao_Paulo:20251019T190000
DTEND;TZID=America/Sao_Paulo:20251019T203000
DTSTAMP:20260604T051433
CREATED:20251006T230914Z
LAST-MODIFIED:20251006T231347Z
UID:949-1760900400-1760905800@dravet.ca
SUMMARY:New Brunswick Coalition of Persons with Disabilities
DESCRIPTION:Twice per month\, we invite our members to join in for our virtual Coffee Chat. You have something in mind you want to talk about? Great! Join us! Just want to chit-chat? Join us! Every 1st and 3rd Sunday of the month (some exceptions). \nMust be registered to attend. Go here to register and you will receive your own individual link. Please keep that link to attend all future Coffee Chats or Member Matters sessions!
URL:https://dravet.ca/event/new-brunswick-coalition-of-persons-with-disabilities/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20251016T220000
DTEND;TZID=UTC:20251016T230000
DTSTAMP:20260604T051433
CREATED:20251007T184950Z
LAST-MODIFIED:20251007T184950Z
UID:962-1760652000-1760655600@dravet.ca
SUMMARY:Hub meeting - Ontario
DESCRIPTION:
URL:https://dravet.ca/event/hub-meeting-ontario/
LOCATION:Teams
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Sao_Paulo:20251012T193000
DTEND;TZID=America/Sao_Paulo:20251012T203000
DTSTAMP:20260604T051433
CREATED:20251006T231316Z
LAST-MODIFIED:20251006T231316Z
UID:952-1760297400-1760301000@dravet.ca
SUMMARY:New Brunswick Coalition of Persons with Disabilities
DESCRIPTION:Back by popular demand! Once a month\, on the 2nd Sunday of the month\, we invite you – our members – to join in to our virtual Member Matters sessions. We encourage you to\nsubmit ideas for subjects\, as every session is devoted to doing a deep dive into ONE particular subject. Send your ideas to info@nbcpd.org.\nJoin us for these sessions dedicated to subjects that are important to you as a person with a disability. \nRegister by following the link in the Event Calendar\, and you will receive your own individual link. Please keep that link to attend all future Coffee Chats or Member Matters sessions! \n 
URL:https://dravet.ca/event/new-brunswick-coalition-of-persons-with-disabilities-2/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=America/Halifax:20251011T100000
DTEND;TZID=America/Halifax:20251011T150000
DTSTAMP:20260604T051433
CREATED:20250925T040001Z
LAST-MODIFIED:20250925T040001Z
UID:922-1760176800-1760194800@dravet.ca
SUMMARY:Équipe de Thomas
DESCRIPTION:Bonjour à tous\, Nous vous invitons chaleureusement à participer à une marche solidaire pour soutenir la recherche et l’espoir de trouver une cure contre le syndrome de Dravet. 📅 Le 11 octobre prochain\, retrouvons-nous dès 10h au Parc Angrignon pour une marche d’environ 2 km. Le départ se fera à 10h30\, près du stationnement situé sur la rue La Vérendrye. ☔ En cas de pluie\, l’événement sera remis au 18 octobre. – Même si vous ne pouvez pas être présents\, il est toujours possible de contribuer à la cause — chaque geste compte ! Merci de votre soutien\, et au plaisir de vous voir nombreux pour marcher ensemble vers un avenir meilleur.
URL:https://dravet.ca/event/equipe-de-thomas/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20251009T140000
DTEND;TZID=UTC:20251009T150000
DTSTAMP:20260604T051433
CREATED:20251007T185227Z
LAST-MODIFIED:20251007T185227Z
UID:964-1760018400-1760022000@dravet.ca
SUMMARY:Hub meeting - Quebec - Réunion du pôle régional du Québec
DESCRIPTION:
URL:https://dravet.ca/event/hub-meeting-quebec-reunion-du-pole-regional-du-quebec/
LOCATION:Teams
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250709T080000
DTEND;TZID=UTC:20250709T170000
DTSTAMP:20260604T051433
CREATED:20250709T183657Z
LAST-MODIFIED:20250709T183657Z
UID:879-1752048000-1752080400@dravet.ca
SUMMARY:SAVE THE DATE!! OWEN'S ROCKSTARS - DRAVET WALK 2025!! SEPTEMBER 27th 💜
DESCRIPTION:
URL:https://dravet.ca/event/save-the-date-owens-rockstars-dravet-walk-2025-september-27th-%f0%9f%92%9c/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250326
DTEND;VALUE=DATE:20250327
DTSTAMP:20260604T051433
CREATED:20180322T011351Z
LAST-MODIFIED:20240827T161422Z
UID:447-1742947200-1743033599@dravet.ca
SUMMARY:Purple Day for Epilepsy Awareness
DESCRIPTION:There will be many PURPLE DAY events across Canada so please share your photos on social media. Show your support and Wear Purple.
URL:https://dravet.ca/event/purple-day-for-epilepsy-awareness/
ATTACH;FMTTYPE=image/jpeg:https://dravet.ca/wp-content/uploads/dravet-kids-2.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20250301
DTEND;VALUE=DATE:20250401
DTSTAMP:20260604T051433
CREATED:20180110T001920Z
LAST-MODIFIED:20240827T161842Z
UID:60-1740787200-1743465599@dravet.ca
SUMMARY:Epilepsy Awareness Month
DESCRIPTION:
URL:https://dravet.ca/event/epilepsy-awareness-month/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241126
DTEND;VALUE=DATE:20241128
DTSTAMP:20260604T051433
CREATED:20240827T162615Z
LAST-MODIFIED:20240827T162615Z
UID:863-1732579200-1732751999@dravet.ca
SUMMARY:Fall 2024 Rare Disease Conference
DESCRIPTION:CORD (Canadian Organization for Rare Disorders) / RQMO (Regroupement quebecois des maladies orphelines)
URL:https://dravet.ca/event/fall-2024-rare-disease-conference/
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20241025
DTEND;VALUE=DATE:20241028
DTSTAMP:20260604T051433
CREATED:20240827T162133Z
LAST-MODIFIED:20240827T162133Z
UID:861-1729814400-1730073599@dravet.ca
SUMMARY:CLAE (Canadian League Against Epilepsy) - Annual Scientific Meeting
DESCRIPTION:
URL:https://dravet.ca/event/clae-canadian-league-against-epilepsy-annual-scientific-meeting/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20180930T130000
DTEND;TZID=UTC:20180930T180000
DTSTAMP:20260604T051433
CREATED:20180809T185401Z
LAST-MODIFIED:20180809T222213Z
UID:588-1538312400-1538330400@dravet.ca
SUMMARY:Walk For The Kids - Riverview\, New Brunswick
DESCRIPTION:Join us for an amazing day with some incredible kids! \nOn Sunday\,\nSeptember 30th\, 2018\,\nDravet.ca will host the 2nd Annual “WALK for the KIDS” at The Chocolate River Station\n391 Coverdale Road\nRiverview\, New Brunswick\,\nCanada E1B 3J6 \nIt will be a fun filled family event that is wheelchair accessible and pets are welcome and our day will include a 2KM walk. \nRegistration begins at 1:00 PM with the walk beginning at 2:00 PM. \nDravet Canada is a volunteer-based Canadian Charity (#850807843RR0001) dedicated to providing education\, support\, research and advocacy on behalf of Canadians living with Dravet Syndrome. We rely on the generous support of individuals like you and our community to help raise awareness and funds\, and we are extremely grateful for your support. \nTo date\, monies raised by all Walks collectively have allowed dravetCanada to award over $300 000 to Canadian researchers to help find a cure and / or better treatment options for Dravet Syndrome! \nPlease come out and walk\, volunteer\, donate or just to cheer us on! Your support is crucial to the success of our event! Hope to see you all there!
URL:https://dravet.ca/event/walk-for-the-kids-riverview-new-brunswick/
LOCATION:Chocolate River Station\, 391 Coverdale Road\, Riverview\, NB\, E1B 3J6\, Canada
CATEGORIES:Walk for the Kids
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20180922T100000
DTEND;TZID=UTC:20180922T170000
DTSTAMP:20260604T051433
CREATED:20180809T172855Z
LAST-MODIFIED:20180824T201117Z
UID:579-1537610400-1537635600@dravet.ca
SUMMARY:Walk For The Kids - Pasadena\, Newfoundland
DESCRIPTION:It will be a fun filled family event that is wheelchair accessible and pets are welcome! Our day will include a 3KM walk and a BBQ \nRegistration begins at 10:00 AM with the walk beginning at 10:30 AM. \n\n\nDravet Canada is a volunteer-based Canadian Charity (#850807843RR0001) dedicated to providing education\, support\, research and advocacy on behalf of Canadians living with Dravet Syndrome. We rely on the generous support of individuals like you and our community to help raise awareness and funds\, and we are extremely grateful for your support. \nTo date\, monies raised by all Walks collectively have allowed dravetCanada to award over $300 000 to Canadian researchers to help find a cure and / or better treatment options for Dravet Syndrome! \nPlease come out and walk\, volunteer\, donate or just to cheer us on! Your support is crucial to the success of our event! Hope to see you all there! \nRegister For Event
URL:https://dravet.ca/event/walk-for-the-kids-pasadena-newfoundland/
LOCATION:Fire Station\, 10 Avenue\, Pasadena\, 10 Ave\, Pasadena\, NL\, A0L 1K0\, Canada
CATEGORIES:Walk for the Kids
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20180825T113000
DTEND;TZID=UTC:20180825T130000
DTSTAMP:20260604T051433
CREATED:20180809T224856Z
LAST-MODIFIED:20181016T170242Z
UID:605-1535196600-1535202000@dravet.ca
SUMMARY:Annual General Meeting 2018
DESCRIPTION:All Family and Friends are Welcome to Attend – please share \nDATE: Saturday August 25th\, 2018\nTIME: 11:30-1:00 pm ET\nRSVP: Wednesday August 22nd\, 2018 to info@dravet.ca \nConference Call \nNominations will be accepted until Monday\, August 20th by completing the Board of Directors application form. Applications will be accepted for all board and committee positions. \nAgenda (.pdf 273 KB) \nConstitution (.pdf 286 KB)
URL:https://dravet.ca/event/annual-general-meeting-2018/
CATEGORIES:Annual General Meeting
ATTACH;FMTTYPE=image/jpeg:https://dravet.ca/wp-content/uploads/agm-2018.jpg
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20180809
DTEND;VALUE=DATE:20181001
DTSTAMP:20260604T051433
CREATED:20180809T202908Z
LAST-MODIFIED:20180809T230050Z
UID:598-1533772800-1538351999@dravet.ca
SUMMARY:Dravet Walk For The Kids - Virtual Walk
DESCRIPTION:Dravet Canada Walk For the Kids general fundraising page for virtual walkers and virtual teams at various locations. \nIf you are interested in participating in the dravetCanada Walk for the Kids event\, to raise funds for Canadian Dravet research\, but are not able to attend one of the many Walk locations\, then you can create a Virtual Team (and recruit team members) and/or be a Virtual Walker. Join us virtually \, show your support and help raise funds for important Dravet research for a cure and /or better treatment options! \nDravet Canada is a volunteer-based Canadian Charity (#850807843RR0001) dedicated to providing education\, support\, research and advocacy on behalf of Canadians living with Dravet Syndrome. We rely on the generous support of individuals like you and our community to help raise awareness and funds\, and we are extremely grateful for your support. \nTo date\, monies raised by all Walks collectively have allowed dravetCanada to award over $300 000 to Canadian researchers to help find a cure and / or better treatment options for Dravet Syndrome!
URL:https://dravet.ca/event/dravet-walk-for-the-kids-virtual-walk/
CATEGORIES:Walk for the Kids
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20180414T090000
DTEND;TZID=UTC:20180414T170000
DTSTAMP:20260604T051433
CREATED:20180207T010000Z
LAST-MODIFIED:20180322T221356Z
UID:145-1523696400-1523725200@dravet.ca
SUMMARY:Dravet Day Montreal 2018
DESCRIPTION:Description\nDravet Canada is pleased to be continuing its series of Dravet Days throughout Canada. Dravet Day Montreal will be a bilingual event. Presentations will be in English\, with a French summary at the end. All Powerpoint slides will be in both languages. \nIt will be an excellent opportunity to meet\, network and share experiences with families living with Dravet Syndrome. Also\, a chance to learn more through information sharing between doctors\, researchers and families. \nTarget audience: families living with Dravet; medical professionals\, researchers and other healthcare providers; school personnel\, therapists\, respite workers\, community agencies and others involved with children living with Dravet. \nA dinner will take place the evening before (Friday\, April 13\, 2018). Limited seating is available. If you wish to attend\, please RSVP at time of registration (email info@dravet.ca) to secure your place. Further information will be provided. \nAdult only event. No child care will be available. \nRegistration Fees:\n\nEARLY BIRD registration of $55 from February 1\, 2018 until MIDNIGHT on February 28\, 2018.\nREGULAR registration of $70 from March 1\, 2018 until NOON on April 6\, 2018.\n\nRegister online:\nhttps://www.eventbrite.ca/e/dravet-day-montreal-tickets-42803689989 \nAgendas:\nEnglish | French
URL:https://dravet.ca/event/dravet-day-montreal-2018/
LOCATION:CHU Sainte-Justine\, 3175 Chemin de la Côte-Sainte-Catherine\, Montréal\, QC\, H3T 1C5\, Canada
ATTACH;FMTTYPE=image/jpeg:https://dravet.ca/wp-content/uploads/2018/02/truecentred-web.jpg
END:VEVENT
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